Comments on: How many of you have an illness the general public has never heard of? http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of Everything about scabies rash and scabies treat Thu, 16 Sep 2010 11:54:35 +0000 hourly 1 http://wordpress.org/?v=3.1.3 By: hello http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of/comment-page-1#comment-469 hello Tue, 29 Sep 2009 08:10:02 +0000 http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of#comment-469 I have Antiphospholipid Antibody Syndrome (APS) and Lupus. APS is considered "rare". I have Antiphospholipid Antibody Syndrome (APS) and Lupus. APS is considered “rare”.

]]> By: eponymouswhitey http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of/comment-page-1#comment-468 eponymouswhitey Sat, 26 Sep 2009 17:58:21 +0000 http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of#comment-468 I don't know whether you'll have heard of it but I have Tom Jones Syndrome. It's not unusual. I don’t know whether you’ll have heard of it but I have Tom Jones Syndrome. It’s not unusual.

]]> By: SISTER FIRE http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of/comment-page-1#comment-467 SISTER FIRE Sat, 26 Sep 2009 06:59:23 +0000 http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of#comment-467 WELL SOMEONE MENTIONED FIBROMYALGIA, IN WHICH I HAVE. ALSO HAVE CHRONIC EPSTEIN BARR SYNDROME, CHRONIC FATIGUE SYNDROM. I ORIGINALLY THOUGHT I HAD REFLEX SYMPATHETIC DYSTROPHY, BUT IT WAS CHECKED OFF THE LIST OF POSSIBILITIES. WELL SOMEONE MENTIONED FIBROMYALGIA, IN WHICH I HAVE. ALSO HAVE CHRONIC EPSTEIN BARR SYNDROME, CHRONIC FATIGUE SYNDROM. I ORIGINALLY THOUGHT I HAD REFLEX SYMPATHETIC DYSTROPHY, BUT IT WAS CHECKED OFF THE LIST OF POSSIBILITIES.

]]> By: sindi a http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of/comment-page-1#comment-466 sindi a Fri, 25 Sep 2009 19:40:00 +0000 http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of#comment-466 go girl ..........do your research , you will be glad you did go girl ……….do your research , you will be glad you did

]]> By: SteelDakier http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of/comment-page-1#comment-465 SteelDakier Thu, 24 Sep 2009 23:41:34 +0000 http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of#comment-465 My aunt has this illness which attacks her upper turso. She develops blisters or cysts that can be as large as peas and they drain a clear liquid that resembles tree sap. On her scalp a red area will form and if she stays in the heat not so much in sunlight the redness will spread and her hair will fall out as if she's on chemo. She will not come out of the house for weeks on end because of the looks she gets from the general public. I tell her that it's the public that stares that are the freaks not her. Two of her children are showing symtems of it also. You are not alone nor a freak. As for myself I have an illness that is a direct result of the number of operations on my chest. Doctors have no name for it yet, but what is happing is that my muscles are pulling away from my ribs. I tear apart easily, over my sternum. The other day I went for an examination to see how far it has progressed and the doctor inserted his hand into my outer chest wall all the way up to his knuckles. I'm due to be operated on during the first week of Oct. I was told the operation will last 12 to 16 hours. When my mother ask how I felt about it at my age all I could say was; See ya on the other side of the day. Kinda dumb but hey I'm no Mel Brooks. My aunt has this illness which attacks her upper turso. She develops blisters or cysts that can be as large as peas and they drain a clear liquid that resembles tree sap. On her scalp a red area will form and if she stays in the heat not so much in sunlight the redness will spread and her hair will fall out as if she’s on chemo.

She will not come out of the house for weeks on end because of the looks she gets from the general public. I tell her that it’s the public that stares that are the freaks not her. Two of her children are showing symtems of it also.

You are not alone nor a freak.

As for myself I have an illness that is a direct result of the number of operations on my chest. Doctors have no name for it yet, but what is happing is that my muscles are pulling away from my ribs. I tear apart easily, over my sternum. The other day I went for an examination to see how far it has progressed and the doctor inserted his hand into my outer chest wall all the way up to his knuckles. I’m due to be operated on during the first week of Oct. I was told the operation will last 12 to 16 hours.

When my mother ask how I felt about it at my age all I could say was; See ya on the other side of the day. Kinda dumb but hey I’m no Mel Brooks.

]]> By: Pisces http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of/comment-page-1#comment-464 Pisces Tue, 22 Sep 2009 21:17:48 +0000 http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of#comment-464 I have OCD,Pure-O.It is something a lot of the general public do not understand.They watch to many movies and expect it all to look like Hollywoods way of showing it.Plus not many people know of it,you feel alone a lot. I have OCD,Pure-O.It is something a lot of the general public do not understand.They watch to many movies and expect it all to look like Hollywoods way of showing it.Plus not many people know of it,you feel alone a lot.

]]> By: andham2000 http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of/comment-page-1#comment-463 andham2000 Sun, 20 Sep 2009 17:33:02 +0000 http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of#comment-463 I have heard that chinese herbal medicine in one trial have proven to be 100% effective against your condition and to anwser your question I have vitaligo which most have not heard of, it means I have white patches all over my body. Just looks like I spilt bleach on my hands so not too bad really. I have heard that chinese herbal medicine in one trial have proven to be 100% effective against your condition

and to anwser your question I have vitaligo which most have not heard of, it means I have white patches all over my body. Just looks like I spilt bleach on my hands so not too bad really.

]]> By: merlin http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of/comment-page-1#comment-462 merlin Sun, 20 Sep 2009 07:41:09 +0000 http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of#comment-462 yes, opticrectumitis, It's where the nerves in your eyes cross with the nerves in your but*, it gives you a shi**y outlook on life yes, opticrectumitis, It’s where the nerves in your eyes cross with the nerves in your but*, it gives you a shi**y outlook on life

]]> By: sunshine http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of/comment-page-1#comment-461 sunshine Sat, 19 Sep 2009 10:20:29 +0000 http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of#comment-461 omg this is cool. not that you have it, i am sorry about that, but i have it too and have felt that there is no one else in the world who has even heard of it. my experiences have all been in groin area none on armpits, but i have had to have surgery on 2 separate occasions to remove ruptured cysts that wont heal. i have had probably 16 episodes in the last few years. its hard to cope, but i hear if you take vitamins and zinc oxide, t helps. other than that i have no idea how to keep them from forming or to get rid of them i just know they are some of the most painful sons a bitches i have ever felt. i don't recommend surgery as an option until last resort because that was more painful than the HS itself. but necessary. IM me if you want karrie252003 and we can talk more about this. omg this is cool. not that you have it, i am sorry about that, but i have it too and have felt that there is no one else in the world who has even heard of it. my experiences have all been in groin area none on armpits, but i have had to have surgery on 2 separate occasions to remove ruptured cysts that wont heal. i have had probably 16 episodes in the last few years. its hard to cope, but i hear if you take vitamins and zinc oxide, t helps. other than that i have no idea how to keep them from forming or to get rid of them i just know they are some of the most painful sons a bitches i have ever felt. i don’t recommend surgery as an option until last resort because that was more painful than the HS itself. but necessary. IM me if you want karrie252003 and we can talk more about this.

]]> By: Just Ducky!! http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of/comment-page-1#comment-460 Just Ducky!! Wed, 16 Sep 2009 14:42:19 +0000 http://www.scabiesanswers.com/skindisorders/how-many-of-you-have-an-illness-the-general-public-has-never-heard-of#comment-460 Have you heard of fibromyalgia? Have you heard of fibromyalgia?

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